Friday, August 16, 2013

Dr. Google

So at the same time I went in for my blood tests to start Lithium I was also getting follow up tests for Anti-phospholipid syndrome (APS or Hughes syndrome). I had gotten my first test last July after having two miscarriages in April and June and then having an odd shortened cycle. I had gone through a TON of tests (over 13 vials) and this is the only one that came back abnormal. But we didn't know if it was a true positive or if it was abnormal because I was yet again pregnant. I couldn't take the test again right away because of the pregnancy, which can sometimes alter tests. So I went 9 months wondering, all the while taking ASA each day. I got my req for tests again in May but didn't go. I put it off and put it off. When my dr gave me my Lithium tests last week she told me I had to get my follow up tests for APS. Since getting those tests done, I spent time reading online about APS, checking signs and symptoms. Of course that is the worst thing a person with an anxiety disorder could do. There are things I had an idea that could be related and it was confirmed, but then there were other things that I didn't realize that could be related that I also have. So now I get to sit here and wonder until those tests come back, and after all the reading with Dr. Google, I am anticipating a positive result. Of course in all my reading I didn't look at treatment, just because I don't want to think that far. But I have a feeling it entails lots of dr visits.....
For those of you wondering these are the signs and symptoms of APS (a * denotes symptoms I have)
  • Blood Clots (arterial or venous with the most common being Stroke or Deep Vein Thrombosis)
  • Miscarriage, stillbirth or premature birth *
  • Possible severe pre-eclampsia
  • Headaches or migraines *
  • Oscillopsia *
  • Double Vision 
  • Joint pain *
  • Excessive hair loss *
  • Cold or bluish hands *
  • Dry eyes *
  • Sharp chest pains *
  • Balance and mobility problems *
  • Speech and memory problems * (more memory than speech)
  • Tingling sensation in the arms and legs * (pins and needles)
  • Fatigue *
As you can see, I have a lot of the symptoms. Fun right?

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